What is INCBase

The Inflammatory Neuropathy Consortium Base (INCbase) is an international registry for CIDP patients led by an international collaboration of CIDP experts. INCbase provides a state of the art modular research database that members may use to collect prospective standardized clinical data and, optionally, biomaterials. This infrastructure will allow us to perform global and unprecedented collaborative studies. In addition, as data entered into INCbase remains the property of that member, this infrastructure will allow use of the data to perform high quality monocenter studies. This custom-made CIDP registry was also developed to help physicians take care of CIDP patients during routine clinical practice.

INCbase has a broad scope as evidenced by the currently defined objectives. As the INCbase project evolves, new and other objectives may be added:

  1. To develop a prognostic model to predict short and long-term treatment response in CIDP patients at the start of treatment
  2. To discover clinical, electrophysiological and biological biomarkers for diagnosis and disease activity
  3. To describe variation in clinical and electrophysiological characteristics of CIDP to define the spectrum and boundaries of CIDP
  4. To describe short and long-term outcomes at impairment, disability and quality of life levels of (subgroups of) CIDP patients
  5. To describe physician and patient perspectives on and satisfaction with different treatments that may be used for CIDP, including plasma-exchange and subcutaneous immunoglobulin
  6. To deepen knowledge on CIDP pathophysiology, including investigating immunological pathways underlying CIDP
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